Search results for: Dravet syndrome

• Emotional experiences of family caregivers of children with Dravet syndrome

  Publication

  • J. Domaradzki

  - EPILEPSY & BEHAVIOR - Year 2023

  Background: Since the psychosocial implications of Dravet syndrome (DS) are much more serious and far-reaching than in other types of epilepsy, caring for a DS child seriously affects the entire family. This study describes the emotional experiences of family caregivers of DS children and evaluates the way caregiving affects their perceived quality of life. Methods: An anonymous, self-administered...

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• Emotional experiences of family caregivers of children with Dravet syndrome

  Publication

  • J. Domaradzki
  • D. Walkowiak

  - EPILEPSY & BEHAVIOR - Year 2023

  Full text to download in external service

• Caring for Children with Dravet Syndrome: Exploring the Daily Challenges of Family Caregivers

  Publication

  • J. Domaradzki
  • D. Walkowiak

  - Children-Basel - Year 2023

  While Polish studies focus on the symptoms, causes and treatment of people suffering from Dravet syndrome (DS), much less is known about the situation of the family caregivers of DS children. This study was designed to explore the experiences, daily challenges and needs related to caring for DS children. An anonymous self-administered online questionnaire was developed. Thesurvey was completed by 75 family caregivers affiliated...

  Full text available to download

• Caring for Children with Dravet Syndrome: Exploring the Daily Challenges of Family Caregivers

  Publication

  • J. Domaradzki
  • D. Walkowiak

  - Children-Basel - Year 2023

  Full text to download in external service