Ultra-rare ultra-care: Assessing the impact of caring for children with ultra rare diseases

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Category:: Magazine publication
Type:: Magazine publication
Published in:: EUROPEAN JOURNAL OF PAEDIATRIC NEUROLOGY no. 48, pages 78 - 84,
ISSN: 1090-3798
ISSN:: 10903798
Publication year:: 2024
DOI:: Digital Object Identifier (open in new tab) 10.1016/j.ejpn.2023.12.003
Verified by:: No verification

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