Search results for: DARE

• Ultra-rare ultra-care: The unique burden of ultra rare disease caregiving

  Publication

  • J. Domaradzki
  • D. Walkowiak

  - EUROPEAN JOURNAL OF PAEDIATRIC NEUROLOGY - Year 2023

  Background: We sought to assesses the impact of caring for children with ultra rare diseases (URDs) on familycarers and to analyse the way these experiences differ among the caregivers of children diagnosed throughprenatal or newborn screening, and those with symptom-based diagnosis.Methods: A total of 200 caregivers of 219 URDs children completed an on-line survey regarding the challengesand experiences...

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• Ultra-rare ultra-care: Assessing the impact of caring for children with ultra rare diseases

  Publication

  • J. Domaradzki
  • D. Walkowiak

  - EUROPEAN JOURNAL OF PAEDIATRIC NEUROLOGY - Year 2024

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• Psychogeriatric care in Poland

  Publication

  • J. Mazurek
  • J. Kowalska
  • J. Rymaszewska

  - Geriatric Mental Health Care - Year 2013

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• Limiting futile therapy as part of end-of-life care in intensive care units

  Publication

  • M. Damps
  • M. Gajda
  • L. Stołtny
  • M. Kowalska
  • E. Kucewicz-Czech

  - Anaesthesiology Intensive Therapy - Year 2022

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• Pharmaceutical care in the neonatal intensive care unit: Perspectives of Polish medical and pharmacy students

  Publication

  • N. Krzyżaniak
  • I. Pawłowska
  • L. Pawłowski
  • I. Kocić
  • B. Bajorek

  - Currents in Pharmacy Teaching and Learning - Year 2019

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• The role of pharmacist in palliative care

  Publication

  • W. Leppert
  • L. Pawłowski

  - Palliative Medicine in Practice - Year 2020

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• DANE I DOKUMENTACJA MEDYCZNA

  Publication

  • J. Rumiński

  - Year 2019

  Rozdział analizuje aspekty danych i dokumentacji medycznych z odniesieniu do międzynarodowych norm technicznych takich jak DICOM, HL7. Wskazuje również definicje dokumentacji medycznej związane z polskim prawem. Porusza również aspekty związane z kolekcjami danych (np. biobanki) jak i bezpieczeństwem danych.

• Treating rare diseases with the cinema: Can popular movies enhance public understanding of rare diseases?

  Publication

  • J. Domaradzki

  - Orphanet Journal of Rare Diseases - Year 2022

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• Are rare diseases overlooked by medical education? Awareness of rare diseases among physicians in Poland: an explanatory study

  Publication

  • D. Walkowiak
  • J. Domaradzki

  - Orphanet Journal of Rare Diseases - Year 2021

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• The level of spiritual care competence of Polish nurses and the psychometric properties of the spiritual care competence scale (SCCS)

  Publication

  • M. Machul
  • R. van
  • D. Ozga
  • K. Jurek
  • S. Boczkowska
  • B. Dobrowolska

  - BMC NURSING - Year 2022

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