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Search results for: Caregiving burden
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Ultra-rare ultra-care: The unique burden of ultra rare disease caregiving
PublicationBackground: We sought to assesses the impact of caring for children with ultra rare diseases (URDs) on familycarers and to analyse the way these experiences differ among the caregivers of children diagnosed throughprenatal or newborn screening, and those with symptom-based diagnosis.Methods: A total of 200 caregivers of 219 URDs children completed an on-line survey regarding the challengesand experiences...
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Digital Government and Administrative Burden Reduction
PublicationAdministrative burden represents the costs to businesses, citizens and the administration itself of complying with government regulations and procedures. The burden tends to increase with new forms of public governance that rely less on direct decisions and actions undertaken by traditional government bureaucracies, and more on government creating and regulating the environment for other, non-state actors to jointly address public...
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Bordón
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Emotional experiences of family caregivers of children with Dravet syndrome
PublicationBackground: Since the psychosocial implications of Dravet syndrome (DS) are much more serious and far-reaching than in other types of epilepsy, caring for a DS child seriously affects the entire family. This study describes the emotional experiences of family caregivers of DS children and evaluates the way caregiving affects their perceived quality of life. Methods: An anonymous, self-administered...
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State of global health – hypertension burden and control
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Burgen und Schlösser
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The Global Burden of Disease Study 2015 and Blood Pressure
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Burden of COVID-19 Pandemic Perceived by Polish Patients with Multiple Sclerosis
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Belarusian – Polish Border: The Politics of Cross-Border Migration
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Belarusian – Polish Border: The Diplomacy of Cross-Border Migration
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Model-Based Decision Support System for the Blast Furnace Charge of Burden Materials
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The way things are done here - Polish entrepreneurship / having endowed heritage or burden?
PublicationPoprzez analizę studiów przypadku, w oparciu o wywiady pogłębione oraz obserwację uczestniczącą, autor przypomina postulaty zaniedbywane w pracach nad polską przedsiębiorczością. Modele przedsiębiorczości zbudowane na podstawie badań w Europie Zachodniej albo Ameryce Północnej niekoniecznie muszą znaleźć swoje odzwierciedlenie w modelach przedsiębiorczości charakterystycznych dla gospodarek po okresie transformacji ustroju gospodarczo-społecznego...
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Forschungen zu Burgen und Schlössern
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Gulden passer (De)
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Acta Didactica Norden
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Global Asthma Network survey suggests more national asthma strategies could reduce burden of asthma
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Sudden death of effective entanglement
PublicationSudden death of entanglement is a well-known effect resulting from the finite volume of separable states. We study the case when the observer has a limited measurement capability and analyze the effective entanglement (i.e., entanglement minimized over the output data). We show that in the well-defined system of two quantum dots monitored by single-electron transistors, one may observe a sudden death of effective entanglement when...
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Euroregion as an Entity Stimulating the Sustainable Development of the Cross-Border Market for Cultural Services in a City Divided by a Border
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The Turów coal mine international dispute as a determinant of the cross-border integration of inhabitants of the Polish-Czech border
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Euroregion as an Entity Stimulating the Sustainable Development of the Cross-Border Market for Cultural Services in a City Divided by a Border
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Evaluation of cross-border cooperation in Czechia since 1993: Euroregions on the way to authentic cross-border regions?
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Thermal imaging and modelling of burned skin
PublicationW artykule przedstawiono wyniki eksperymentów in-vivo na zwierzętach w diagnostyce oparzeń z wykorzystaniem metod obrazowania termicznego w podczerwieni. Wyniki skorelowano z rezultatami otrzymanymi w symulacjach numerycznych tkanki skóry.
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The biological reactions on the implant-organism border
PublicationMateriał przeznaczony do implantacji w tkanki żywego organizmu powinien być biozgodny i biofunkcjonalny. Jeśli tak nie jest, ciało reaguje stanem zapalnym. Reakcje zapalne mogą się objawiać np. odrywaniem się cząstek materiału z powierzchni implantu na skutek tarcia lub nacisku, lub wytworzeniem biofilmu na jego powierzchni.
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Od garden city do ecocity
PublicationArtykuł omawia wybrane wątki ewolucji aspektów środowiskowych miasta w okresie od Garden City do czasów obecnych, omawiając narodziny, rozwój i ideę współczesnego miasta. Rozważania obejmują kolejno genezę i istotę miasta-ogrodu, jednostki sąsiedzkiej, modernizmu, postmodernizmu, nowego urbanizmu, oraz analizę współczesnych idei naprawy miast, zawartych w rozmaitych dokumentach, systemach certyfikacji, pozycjach literaturowych,...
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Sugar Fee in Poland as an Example of New Fiscal Burdens and Stimulation of Consumer Behaviour
PublicationDuring the economic downturn caused by the COVID-19 pandemic, the amount and structure of tax burdens imposed by the state on businesses continue to increase, as shown on the example of the newly introduced sugar fee. A new tax-related burden imposed on businesses and consumers producing and consuming sugar-sweetened beverages appeared at the beginning of 2021. The aim of the paper is to present the fiscal burdens that accompany...
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The psychological burden of long-term care facilities personnel during the SARS-COV-2 pandemic – a national survey in poland
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Musik in Baden-Württemberg
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Linguistics of the TIbeto-Burman Area
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ANNALS OF THE MISSOURI BOTANICAL GARDEN
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Border Crossing
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Navigating the complexities of altruistic helping in Nonprofit Organizations: An analysis of Benefits, Burdens and managerial challenges
PublicationWe investigate how individuals cope with side effects of altruistic behaviour at work, i.e. genuine helping behaviour which is not part of any job description, and what role the organizational context plays in these dynamics. Employing simultaneous dyadic interviews, we show how employees of non-profit organizations cope with undesired effects of altruistic help. Our data provides evidence of unintended outcomes for the individual...
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Should patients with sudden deafness be tested for COVID19?
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Nitride LEDs and Lasers with Buried Tunnel Junctions
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Multilayer thermal model of healty and burned skin
PublicationW pracy przedstawiono spójny model cieplny skóry wraz z tkankami podskórnymi, na podstawie pomiarów "in vitro" na świni domowej. Model uwzględnia rozkład temperatury, przewodności cieplnej oraz efuzyjności i dyfuzyjności cieplnej w funkcji głębokości, zarówno dla skóry zdrowej jak i oparzonej.
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Rehabilitacja dzieci autystycznych oraz z zespołem Downa a poczucie obciążenia opiekunów / Rehabilitation of children with Down Syndrome and autism, and caregivers burden
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Cross-border Cooperation Local Governments in the Euroregion Baltic
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Usage of parametric echosounder with emphasis on buried object searching.
PublicationThe purpose of this article is to present the results of investigation to search for buried objects. The paper will contain echograms and other means of visualization from buried pipe placed between area of W?adys?awowo and gas platform and interesting in terms of the number of small and medium-sized unidentified objects found in the muddy bottom at different depths localized in the Gulf of Puck - results will be presented also...
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Stradar - Multimedia Dispatcher and Teleinformation System for the Border Guard
PublicationSecurity of national borders requires utilization of multimedia surveillance systems automatically gathering, processing and sharing various data. The paper presents such a system developed for the Maritime Division of the Polish Border Guard within the STRADAR project. The system, apart from providing communication means, gathers data, such as map data from AIS, GPS and radar receivers, videos and photos from camera or audio from...
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Psychological burden and disease-related quality of life in dialysis patients during the first wave of the COVID-19 pandemic — a cross-sectional observational study
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Vegetation Dynamics and Diversity Status in Mughal Garden Wah, Pakistan
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Epilepsy and hypertension: The possible link for sudden unexpected death in epilepsy?
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Sustainable Development of Socio-cultural Capital in the City Divided by Border
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Challenge for the sustainable city - is the Garden City idea still relevant?
PublicationTekst ma na celu porównanie europejskiej architektury mieszkaniowej powsta-łej w okresie ostatnich stu lat po obu stronach Żelaznej Kurtyny oraz przy-wołanie historycznych zasad jej kształtowania. Rozważa współczesne tenden- cje i poglądy nt. zrównoważonego projektowania miasta oraz zachęca do ref-leksji nad aktualnością idei Miasta-Ogrodu.
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Detection of Objects Buried in the Sea Bottom with the Use of Parametric Echosounder
PublicationThe paper contains results of a in situ research main task of which was to detect objects buried, partially or completely, in the sea bottom. Object detecting technologies employing acoustic wave sources based on nonlinear interaction of elastic waves require application of parametric sound sources. Detection of objects buried in the sea bottom with the use of classic hydroacoustic devices such as the sidescan sonar or multibeam...
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EVENTS VISUALIZATION POST IN A DISTRIBUTED TELEINFORMATION SYSTEM FOR THE BORDER GUARD
PublicationEvents Visualization Post is a part of the STRADAR project, which is dedicated to streaming real-time data in distributed dispatcher and teleinformation systems of the Border Guard. Events Visualization Post is a software designed for simultaneous visualization of data of different types. In the paper, the structure of the software is presented, the process of generation of tasks is described, and the visualization of audio, files,...
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Searching of the buried objects in the sea bottom by means of noninvasive methods
PublicationSearching of objects on the seabed or under its surface currently is a challenge for a number of researchers interested in the sea bottom. The problem relates to the objects on the depths of up to several tens of meters from the surface of the seabed. Finding the objects is the subject of interest for a wide group of users starting from archaeologists, and ending on groups interested in marine safety, as well as in military application...
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New 2017 American Heart Association and American College of Cardiology guideline for hypertension in the adults: major paradigm shifts, but will they help to fight against the hypertension disease burden?
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Sudden Hearing Loss Treated With Hyperbaric Oxygen (HBO) – Case Study
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Extracorporeal Cardiopulmonary Resuscitation—A Chance for Survival after Sudden Cardiac Arrest
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Searching of the buried objects into the sea bottom by means of nonlinear acouctic methods
PublicationThe main goal of this paper is to introduce the methodology of preparing the area for investigations that will be carried out at the sea. As the first step there is recognition of the basic method both in the theory as well as experimental investigation. There were taken into account the nonlinear methods. These ones are very promising methods that have very interesting features, very convenient for examinations of the seabed structure....